Educating your advanced cancer patients about the value and importance of not postponing joy.
There is a tendency to avoid discussing the future, too far in advance, with your patients with advanced disease. The sooner we bring up the topic of not postponing joy, the better however. Patients may even say that they are planning on a family vacation to Disney World in 2 years. Your thoughts immediately go to estimating when she will be likely too ill to go but may not be verbalizing this to her. You don’t want to take away hope and burst that bubble. It however isn’t fair to the patient to be assuming that no response from you regarding such an announcement, or worse, saying that this sounds great, is doing her an injustice. Additionally, though she may still be living in two years and technically able to go to Disney World, she may very well be spending her time in the hotel room and not enjoying herself and her children/grandchildren doing park activities. Her goal wasn’t to be in a bed too weak to partake of this important family adventure. This is why a discussion about “Don’t Postpone Joy” is so important. It fits for many clinical settings too.
What you will learn from this module:
- How to engage in a discussion with the patient and their family about planning for the future, including joyous moments.
- Why it is important to be honest with patients about their condition and what to expect in their future.
- Why recommending to patients to not postpone joys will provide them a better opportunity of enjoying these activities.
- Life is unpredictable. Her cancer could become more aggressive or get into better control. This is unknown for now. Encouraging her to do these milestone activities now, while still well enough, will ensure everyone participating will have wonderful memories.
- If joy is postponed and the patient is too ill to partake in this family trip, the outcome is one of regret.
Speakers
Lillie D. Shockney, RN, BS, MAS, HON-ONN-CG
University Distinguished Service Professor of Breast Cancer Professor of Surgery
Johns Hopkins University School of Medicine
Co-Developer, Work Stride- Managing Cancer at Work
Johns Hopkins Healthcare Solutions
Co-Founder, Academy of Oncology Nurse & Patient Navigators (AONN+)
Co-Founder, Association of Chronic & Complex Care Nurse Navigators (ACCCNN)
Baltimore, MD, USA
Her name is well known in the cancer field, especially in navigation, survivorship, patient centered care, preservation of quality of life, end of life planning and care, improving the cancer patient’s experience, breast cancer and clinical outcomes. She clinically specializes in breast cancer care. Her public speaking, literary work, and notable roles she has held over the last 40+ years are well known to many.
Accreditation and Disclosure Information
Target Audience
This activity is intended for physicians.
Educational Objective
After completing this CME activity, the participant should be better able to: ·
- Assess the importance and timing of providing an advanced cancer patient tools and resources to experience a good and peaceful death.
Providers
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Faculty Disclosures
Planner/Presenter
Lillie D. Shockney, RN, BS, MAS, HON-ONN-CG
The Johns Hopkins University School of Medicine
Baltimore, MD, USA
Lillie D. Shockney, RN, BS, MAS, HON-ONN-CG, has a financial interest/relationship or affiliation in the form of:
Speakers’ Bureau: Pfizer Oncology
All of the relevant financial relationships of individuals for this activity have been mitigated.
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